Showing posts with label cervical cancer. Show all posts
Showing posts with label cervical cancer. Show all posts

Thursday, December 1, 2016

Magic

My kids and I were in the car a couple weeks ago and we were pointing out Christmas decorations.  If you've met me, you know I LOVE Christmas and I get so excited that I just can't hide it.  If you've met my kids, you know they can't pass a Christmas tree or Christmas light without declaring it loudly.  This was the perfect time to happily turn on some festive tunes.  Toby, my son, asked me from the backseat, "Mommy, why do you love Christmas so much?".  First panic set in because my full answer would've taken the entire car ride home to explain and his attention span is only about 4 seconds.  So I decided on, "Because it's magical".  His response?  "There's no magic, Mommy.  Santa just puts all the toys on his sled and delivers them to the kids!".

Seriously.

Stop it.

I teared up and my heart smiled it's biggest smile.  Magical.

I had no idea how to start this blog post, so I chose my favorite recent kid story.  How I really wanted to start it was....I have cancer again.  (Seemed a bit harsh. It's the holidays.) For those of you keeping track, Santa has now given me the wrong gift 2 years in a row.  It's true.  It's back.  It's not in the same place, but it's in the same general area.  I won't go into detail because it involves the word vagina and that makes people uncomfortable.  There are typically 3 ways that cancer is fought: surgery, radiation, and chemo.  Unfortunately due to the location of the new tumor, surgery is not an option.  Radiation is not an option either, as you can't radiate the same area twice.  That leaves chemo.  My oncologist set me up to start chemo today.  One 8-hour round of a three drug cocktail every 21 days for 6 cycles.  The thing about the chemo is there's only a 20% chance it'll work.  20%.  Not great.

There's something I don't think I've shared on this little blog yet.  Which is surprising because I share pretty much everything.  The type of cancer I have is called Glassy Cell.  Why does that matter? With a quick google search, you'll see that Glassy Cell is no good.  The kind of cancer you don't want.  Not that you want any.  It's exceptionally rare and extremely aggressive.  Of all cervical cancer patients, less than 1% have this type.  It is also one of the types of cervical cancer not caused by HPV.  Yes, it's possible to get cervical cancer without having HPV.  Little known fact.  You're welcome.

I've know I've had Glassy Cell since day 1 which means I've known it was a possibility it was going to return at some point after I beat it.  Thanksgiving would've been my 6 month cancer free anniversary.  I expected it to wait a bit longer.

So in a turn of events, yesterday I was given an opportunity to go for a second opinion and I've decided to take it.  I did not start treatment today and have put it on hold so I can travel to Sloan-Kettering to see what they have to say.  I was nervous that my doctor wouldn't want me to delay treatment for a week because what we're looking at it is so serious. But I've been given the green light and I am incredibly grateful for this opportunity.

How did we get to this point?

After my last battle, I was set up on a 3-month plan.  Every 3 months I would get a check up at Roswell.  (I'm much better at making these appointments than I am at the oil change ones)  My last check up was in October.  They found something. At the time, in the office, it was hard to tell exactly what they found.  Could just be bad tissue from the radiation.  Could be cancer.  Could be nothing.  They did a quick biopsy there and that came back clear.  The doc sent me for a scan juuuuust in case.  Good thing.  You light up in scans when you have cancer.  I was lit.  Still, we needed to be sure.  This could be a false positive.  They sent me into the operating room and took "lots" of biopsies.  Now as I'm writing this I'm realizing I never asked how many they took and I'm curious.  These showed cancer.  That made it official.

Lots of emotions.  I haven't really cried a lot.  It's weird.  I'm an emotional person usually, but this doesn't do it for me.  I'm just annoyed.  Like stop it.  I want to live my happy little life without worrying if this is my last Christmas.  This also makes me feel super awkward.  I hate telling people that my cancer is back.  Unfortunately for most, I'm fairly blunt in my delivery of this news and people don't handle that very well.  Sorry.  I'm a realist, not a dreamer.  No puppies and rainbows here. I know what I'm up against.  This made telling family and friends way harder than the first time.  Most people I told found out via text.  And a lot of my friends are finding out right now.  Modern technology kind of made me an asshole and I apologize.  But it also is giving me this outlet and opportunity to share my story.  And that's amazing.  

Thank you, All.  Thank you for being with me on my adventures over the last year.  My support system is the best on the planet and I appreciate every single bit of support you've shared with my family and I.

Round 2.  
Ready.


Monday, October 10, 2016

Cancer? What cancer?

You know what my favorite one-liner is? I'm X months cancer free. Seriously, it has not gotten old. 

A couple weeks ago I applied and was picked to be part of a Leadership program at work.  The company chose 2 or 3 people at each of its locations and shipped us all to Ohio to spend a week in the woods at a leadership camp. This entire process was outside my comfort zone from the beginning.  But as cliche as it sounds, cancer reminds you that life is short, so I might as well go on as many adventures as I can. To apply, you had to make a 2 minute video of yourself explaining why you wanted to be a Leadership Champion.  You know how many takes it took me? About 27. That's not an exaggeration. It got to the point where I filled the memory on my phone and couldn't record anymore.  Then with the video you had to submit a paragraph also explaining why you wanted to be Leadership Champion. I'm fine writing a blog. My real life writing skills? Not the greatest.

So here I am, in the middle of the woods, with 60 people I don't know - except for Hannah, my co-champion from Buffalo. Not nerve-wracking at all. We did an ice breaker to give everyone a chance to introduce themselves. We tossed this ball around that had lots of questions on it.  When you caught it, you had to answer the question under your thumb.  Mine was: What makes you happiest? So many things. But I decided to share THE thing. The Saturday following camp was going to mark my four month anniversary of being cancer free. Later on I was able to share with my little group the story of my red shoes.  Of course I had worn them on my first day at camp - it was a new adventure! 

Throughout the week we learned how to facilitate leadership seminars, did group activities, and on the last day we did a high ropes course - I looked forward to this part all week. On the ropes course I was paired up with a man named Greg.  He's a morning show host at a radio station out in Tucson. We made a great match - we were both up for trying anything. After we had our training and were suited up and strapped in, we made our way up to the top. We crossed some swinging steps and made our way to the zip line. I was so stinking excited. But as we stood there waiting for our turn I kind of lost it. I got super emotional and I couldn't even control it. How embarrassing. This poor guy was stuck with the crying girl. I wasn't scared though. It definitely wasn't fear. It was like everything in that moment was perfect. Here I was about to be 4 months cancer free and I got to fly.  Fly through the air as free as a bird.  And I was so grateful to have a partner who enjoyed the moment with me.  Definitely a moment I won't ever forget.

So to officially celebrate being cancer free, I decided - at a moment of insanity - that I should run a half marathon on my anniversary. 12 hours after landing in Buffalo after a week in the woods, I was standing at the start line of the Mighty Niagara Half Marathon.  I can't even tell you how many excuses I gave myself to not run this race.  I was exhausted. I hadn't trained well enough.  I had been down and out from fighting off shingles just a few weeks prior. SHINGLES! (I thought only old people get shingles.)  I needed to do this. I needed to prove to myself that I could do it. I wasn't dead. Just a little beat up.

My first half mile was like the scene of a movie. I got a bit emotional. I mean, I was running a freaking half marathon...after kicking cancer's ass. Then just ahead of me I saw a woman running wearing a pink breast cancer cape. How cool is that? She's like a cancer superhero! So I'm already emotional and then I see her and THEN "Seize the Day" from Newsies comes on my playlist...
"Now is the time to seize the day
Stare down the odds and seize the day"
Seriously, it was like I was set up or something.  (Yes, I'm ignoring the fact that your making fun of my music selection. It's my favorite musical, ok?) I catch up to the superhero and we run the first few miles together.  Here I was so proud because I was doing this race post cancer and she tells me she's currently being treated for breast cancer.  Her name is Janice and she's amazing.  Just amazing. 

Here is where the embarrassing part happened.  It's me. There's an embarrassing part to all my adventures. Turns out the digestion issues don't go away after you finish treatment.  Now they're not nearly as bad as they were during treatment, but I'm definitely not 100%. You know when a really bad time to have to "go" is?  When you're about 7 miles in to a 13 mile race and the next potty stop isn't for another 1.5 miles.  If you've never done this race or you don't live on the race route, you probably didn't know that some people tailgate in their front yards to watch and cheer the runners.  Its pretty great.  So I asked a tailgater if I could use their bathroom. And they said yes! These poor people let me into their beautiful Victorian home.....to poop. They're my heroes. 

After that, I finished the second half of the race and finished strong with a time of just over 3 hours.  For you non-running people, that's REALLY slow.  But this was the one race I didn't care about beating any records. I just needed to finish. I'm so thankful for my husband and sister who were there cheering me on throughout the race, offering to pick me up when they found out I was in a stranger's house, and letting me cry on their shoulders after I crossed the finish line.  I'm a survivor, guys.  I did it.

And the people who let me poo at their house? I wrote down their name and address and the next week I sent them a pack of toilet paper and an air freshener.

Friday, January 15, 2016

Work Family

Sometimes I have days at work that make me feel like I'm starring in an After School Special.  Today was one of those days.

I was asked by my oncologist to be his guest on AM Buffalo.  They were doing a segment about Cervical Cancer Awareness Month and he needed a patient that was willing to talk about her diagnosis. Go on live tv and talk about your hoohoo? Who would do that? I said yes.

It made it easier to say yes because I knew what I was getting in to. I work at Channel 7.  I've seen live tapings of the show.  I know Linda is a fabulous host that makes you feel like you're chatting with a friend, not being interviewed on live tv.  She's been in my shoes.  I knew I was safe.

I think I was fine and excited about my decision to do this until I walked in the studio.  I didn't know my heart could beat so fast.  Besides having to be on live tv, I was wearing adult clothes so i was uncomfortable.  'Why are you telling us this?', you ask? I had surgery last Friday.  This was the first day since then that I wasn't wearing elastic waisted comfy pants AND I was wearing high heels.  Silly me thought I should look professional on tv.  It wasn't until my coworkers started trickling into the studio and each one asked me where my red shoes were that I regretted dressing like an adult.  They know.  They're amazing. That was all it took-I needed my red shoes.

This is where the After School Special portion of my day kicked in.  Picture little Susie sitting on the sidelines at her first basketball game. Her friends bring her these red shoes and then she magically plays the best game ever as her friends cheer her on.

In real life, my entire sales team came down to the studio before the interview.  They saw I didn't have my red shoes on, so someone ran up to my desk to get them - They know how much these silly shoes mean to me. Then they all stuck around to watch their little assistant talk about having cancer on live TV. Its not just at home, from family and friends, that I have support.  I have support from these crazy kids at work and I'm super grateful.

They care.  They're not coworkers.  They're friends. They're my work family.  I'm a lucky girl.

And when you're done watching, call and make a Dr. appointment.  It could save your life.

Saturday, January 9, 2016

Moving On Up

In preparation for my treatment, some changes needed to be made to my "real estate".  Yesterday I had a little surgery done.  The doctors want to keep my ovaries healthy.  If anything happens to them it could send me in to early menopause.  Nobody wants that. In order to save them, they needed to be moved up and out of the radiation zone.  I can't exactly explain where they're living at the moment, but they're in there and I'm hoping they're enjoying their new neighborhood.

The bad news in all of this is I'm going to have to give up my dream of being a bikini model. Between the incision scars from this surgery, the incision scars from my gall bladder surgery, and the giant scar from my c-section, I have one heck of a distorted smiley face going on on my belly. It's quite ridiculous.  Like an eight-eyed smiling monster.

I've had a few visits to Roswell so far, but this was my first big procedure.  I came in contact with so many doctors and nurses before and after my surgery. It really takes a special person to do these jobs. The picture below was taken just before I left. This is my nurse from recovery. Her name is Maureen. She was fantastic - kind, gentle, friendly. Everyone was amazing. My Dr. had a great team that day and I am very grateful.  I'm sore, but on the mend.  Glad this is out of the way now....literally.

Friday, January 8, 2016

And The Adventures Begin

On December 16th, I went to my annual checkup "down there". Like most women, I find these appointments annoying. I mean...they're kind of a hassle, they're intrusive, they're just not fun.

It was a good thing I went to my annoying appointment because 8 days later, on Christmas Eve, I was told I had cancer.  Excuse me? Me? No. This was not on my Christmas list. I'm 33. I'm fairly healthy. I ran a half marathon 3 months ago, for the love of pete. But, yes, it's true.

Now that we have the biopsy and scan results, I know I have Stage 1 Cervical Cancer. There is a golf ball size mass inhabiting my cervix.  His name is Roid, by the way. Roid is a jerk. We're not friends. Due to the size of Roid, surgical removal is not an option so I will be starting Chemotherapy and Radiation treatments in the next few weeks.

This is not the kind of adventure I envisioned for 2016, but you know what?  Bring it on, Roid. You're going down. You don't know who you're messing with.

I invite you to join me on my adventure. There's no worrying though....we got this.

I'm at Roswell today for my "quick and easy" surgery. 

Here we go.